Care at the Close of Life: Evidence and Experience

Contributors

Editors

Stephen J. McPhee, MD

Department of Medicine

University of California, San Francisco

San Francisco, California, USA

Margaret A. Winker, MD

Journal of the American Medical Association

Chicago, Illinois, USA

Michael W. Rabow, MD

Department of Medicine

University of California, San Francisco

San Francisco, California, USA

Steven Z. Pantilat, MD

Department of Medicine

University of California, San Francisco

San Francisco, California, USA

Amy J. Markowitz, JD

University of California, San Francisco

San Francisco, California, USA

Foreword

Irene J. Higginson, BMBS, PhD, FFPHM, FRCP

Department of Palliative Care, Policy and Rehabilitation

Cicely Saunders Institute

King's College London

London, England, UK

Chapter Authors

Janet L. Abrahm, MD

Division of Adult Palliative Care

Department of Psychosocial Oncology and Palliative Care

Dana-Farber Cancer Institute and Brigham and Women's Hospital and Center for Palliative Care

Harvard Medical School

Boston, Massachusetts, USA

Spinal Cord Compression in Patients With Advanced Metastatic Cancer

Jocelia Adams, RN

Center for Caregiver Training

San Francisco, California, USA

Physician Opportunities to Support Family Caregivers at the End of Life

Yesne Alici, MD

Geriatric Services Unit

Central Regional Hospital

Butner, North Carolina, USA

Agitation and Delirium at the End of Life

Robert M. Arnold, MD

Section of Palliative Care and Medical Ethics

Institute for Doctor-Patient Communication

Institute to Enhance Palliative Care

University of Pittsburgh School of Medicine

Pittsburgh, Pennsylvania, USA

Dealing With Conflict in Caring for the Seriously Ill

Anthony L. Back, MD

Seattle Cancer Care Alliance

University of Washington

Fred Hutchinson Cancer Research Center

Seattle, Washington, USA

Dealing With Conflict in Caring for the Seriously Ill

Michael B. Banffy, MD

Harvard Combined Orthopedics Program

Harvard Medical School

Boston, Massachusetts, USA

Spinal Cord Compression in Patients With Advanced Metastatic Cancer

Paul B. Bascom, MD

Division of General Internal Medicine and Geriatrics

Oregon Health & Science University

Portland, Oregon, USA

Responding to Requests for Physician-assisted Suicide

Billings J. Andrew, MD

Palliative Care Service

Massachusetts General Hospital and Harvard Medical School Center for Palliative Care

Boston, Massachusetts, USA

Care of the Dying Doctor

Leslie J. Blackhall, MD, MTS

Palliative Care Service

University of Virginia School of Medicine

Charlottesville, Virginia, USA

Negotiating Cross-cultural Issues at the End of Life

Susan D. Block, MD

Department of Psychosocial Oncology and Palliative Care

Dana-Farber Cancer Institute and Brigham and Women's Hospital and Center for Palliative Care

Harvard Medical School

Boston, Massachusetts, USA

Psychological Considerations, Growth, and Transcendence at the End of Life

Kenneth S. Boockvar, MD, MS

Geriatrics Research, Education, and Clinical Center

JJ Peters Veterans Affairs Medical Center

Bronx, New York, USA and Brookdale Department of Geriatrics and Palliative Medicine

Mount Sinai School of Medicine and Jewish Home Lifecare

New York, New York, USA

Palliative Care for Frail Older Adults

William Breitbart, MD

Department of Psychiatry and Behavioral Sciences

Memorial Sloan-Kettering Cancer Center

New York, New York, USA

Agitation and Delirium at the End of Life

David M. Browning, MSW

Education Development Center, Inc.

Newton, Massachusetts, USA

Sudden Traumatic Death in Children

Eduardo Bruera, MD

Department of Palliative Care and Rehabilitation Medicine

University of Texas, MD Anderson Cancer Center

Houston, Texas, USA

Palliative Management of Fatigue at the Close of Life

Chochinov Harvey Max, MD, PhD, FRSC

CancerCare Manitoba

Department of Psychiatry

University of Manitoba

Winnipeg, Manitoba, Canada

Dignity-Conserving Care—A New Model for Palliative Care

Adolph E. Christ, MD, DrMSc

Division of Child/Adolescent Psychiatry

State University of New York Health Science Center and Kings County Hospital

Brooklyn, New York, USA

Adolescent Grief

Grace H. Christ, DSW

School of Social Work

Columbia University

New York, New York, USA

Adolescent Grief, Sudden Traumatic Death in Children

Nicholas A. Christakis, MD, PhD, MPH

Department of Health Care Policy

Department of Medicine

Harvard Medical School

Boston, Massachusetts, USA

Complexities in Prognostication in Advanced Cancer

Lewis M. Cohen, MD

Tufts University School of Medicine

Baystate Medical Center

Springfield, Massachusetts, USA

Practical Considerations in Dialysis Withdrawal

Stephen R. Connor, PhD

Worldwide Palliative Care Alliance

London, UK

Referring a Patient and Family to High-Quality Palliative Care at the Close of Life

Coyle Nessa, NP, PhD

Pain and Palliative Care Service

Department of Medicine

Memorial Sloan-Kettering Cancer Center

New York, New York, USA

Managing an Acute Pain Crisis in a Patient With Advanced Cancer

Curtis J. Randall, MD, MPH

Division of Pulmonary and Critical Care

Department of Medicine

Harborview Medical Center

University of Washington

Seattle, Washington, USA

Integrating Palliative Care for Liver Transplant Candidates

Janet Duncan, MSN, CPNP

Pediatric Advanced Care Team

Department of Psychosocial Oncology and Palliative Care

Dana-Farber Cancer Institute

Children's Hospital, Boston

Boston, Massachusetts, USA

Caring for the Child With Cancer at the Close of Life

Mary Ersek, PhD, RN

School of Nursing

University of Pennsylvania

Philadelphia, Pennsylvania, USA

Meeting Palliative Care Needs in Post–Acute Care Settings

Kathleen M. Foley, MD

Pain and Palliative Care Service

Memorial Sloan-Kettering Cancer Center

New York, New York, USA

Managing an Acute Pain Crisis in a Patient With Advanced Cancer

Marshall Forstein, MD

Department of Psychiatry

Cambridge Health Alliance and Harvard Medical School

Cambridge, Massachusetts, USA

Overcoming the False Dichotomy of Curative vs Palliative Care for Late-Stage HIV/AIDS

Erik Fromme, MD

OHSU Center for Ethics in Healthcare

Division of Hematology and Medical Oncology

Department of Medicine

Oregon Health & Science University

Portland, Oregon, USA

Care of the Dying Doctor

Eric Genden, MD

Division of Head and Neck Oncology

Department of Otolaryngology

Mount Sinai School of Medicine

New York, New York, USA

Palliative Care for Patients With Head and Neck Cancer

Michael J. Germain, MD

Renal Program

Department of Medicine

Baystate Medical Center

Springfield, Massachusetts, USA

Practical Considerations in Dialysis Withdrawal

Nathan E. Goldstein, MD

Herzberg Palliative Care Institute

Brookdale Department of Geriatrics and Palliative Medicine

Mount Sinai School of Medicine

New York, New York, USA and HSR&D Research Enhancement Award Program

Geriatrics Research, Education, and Clinical Center

James J. Peters Veterans Affairs Medical Center

Bronx, New York, USA

Palliative Care for Patients With Head and Neck Cancer

James Hallenbeck, MD

Division of General Internal Medicine

Department of Medicine

Stanford University School of Medicine and Veterans Affairs Palo Alto Health Care System

Palo Alto, California, USA

Palliative Care in the Final Days of Life

Laura C. Hanson, MD, MPH

Division of Geriatric Medicine

Center for Aging and Health & Palliative Care Program

University of North Carolina

Chapel Hill, North Carolina, USA

Meeting Palliative Care Needs in Post–Acute Care Settings

Sarah E. Harrington, MD

Division of Hematology/Oncology

Department of Internal Medicine

Winthrop P. Rockefeller Cancer Institute

University of Arkansas for Medical Sciences

Little Rock, Arkansas, USA

The Role of Chemotherapy at the End of Life

Mitchel B. Harris, MD

Division of Spinal Surgery

Department of Orthopedic Surgery

Brigham and Women's Hospital

Harvard Medical School

Boston, Massachusetts, USA

Spinal Cord Compression in Patients With Advanced Metastatic Cancer

Richard L. Harrison, PhD

Vancouver Couple and Family Institute

University of British Columbia Counselling Psychology Program

Vancouver, British Columbia, Canada

Self-care of Physicians Caring for Patients at the End of Life

Joshua M. Hauser, MD

Palliative Care and Home Hospice Program

Buehler Center on Aging, Health and Society

Department of Medicine

Feinberg School of Medicine

Northwestern University

Chicago, Illinois, USA

Physician Opportunities to Support Family Caregivers at the End of Life

Craig A. Hurwitz, MD

Pediatric Advanced Care Team

Department of Pediatric Oncology

Dana-Farber Cancer Institute

Boston, Massachusetts, USA

Caring for the Child With Cancer at the Close of Life

Ann C. Hurley, RN, DNSc

Center for Nursing Excellence

Brigham and Women's Hospital

Boston, Massachusetts, USA

Alzheimer Disease

Selby C. Jacobs, MD, MPH

Department of Psychiatry

Yale University School of Medicine

New Haven, Connecticut, USA

Caring for Bereaved Patients

Marjorie Kagawa-Singer, PhD, MN, RN

Department of Asian American Studies and School of Public Health

Department of Community Health Sciences

University of California, Los Angeles

Los Angeles, California, USA

Negotiating Cross-cultural Issues at the End of Life

Michael K. Kearney, MD

Palliative Care Consultation Service

Santa Barbara Cottage Hospital and Visiting Nurse and Hospice Care

Santa Barbara, California, USA

Self-care of Physicians Caring for Patients at the End of Life

Margot B. Kushel, MD

Division of General Internal Medicine

Department of Medicine

University of California San Francisco and San Francisco General Hospital

San Francisco, California, USA

End-of-Life Care for Homeless Patients

Elizabeth B. Lamont, MD, MS

Division of Hematology/Oncology

Massachusetts General Hospital and Department of Health Care Policy

Harvard Medical School

Boston, Massachusetts, USA

Complexities in Prognostication in Advanced Cancer

Anne M. Larson, MD

Liver Transplantation Division of Digestive and Liver Diseases

University of Texas Southwestern Medical Center

Dallas, Texas, USA

Integrating Palliative Care for Liver Transplant Candidates

John F. Linder, MSW, LCSW

Division of Hematology and Oncology

Department of Internal Medicine

University of California Davis Cancer Center

Sacramento, California, USA

Palliative Care for Prison Inmates

Bernard Lo, MD

Program in Medical Ethics

Department of Medicine

University of California, San Francisco

San Francisco, California, USA

Palliative Sedation in Dying Patients

John M. Luce, MD

Division of Pulmonary and Critical Care Medicine

Department of Medicine

University of California, San Francisco and San Francisco General Hospital

San Francisco, California, USA

Management of Dyspnea in Patients With Far-Advanced Lung Disease

Judith A. Luce, MD

Division of Hematology-Oncology

Department of Medicine

University of California, San Francisco and San Francisco General Hospital

San Francisco, California, USA

Management of Dyspnea in Patients With Far-Advanced Lung Disease

Beth Lynch, NP

Division of Hospital Medicine

Northwestern Memorial Hospital

Chicago, Illinois, USA

Management of Intractable Nausea and Vomiting in Patients at the End of Life

Joanne Lynn, MD, MS

Colorado Foundation for Medical Care

Englewood, Colorado, USA

The Role of Hospice and Other Services

Amy J. Markowitz, JD

University of California, San Francisco

San Francisco, California, USA

The End of the Story (various chapters)

Stephen J. McPhee, MD

Division of General Internal Medicine

Department of Medicine

University of California, San Francisco

San Francisco, California, USA

The End of the Story (various chapters)

Diane E. Meier, MD

Center to Advance Palliative Care

Mount Sinai School of Medicine

New York, New York, USA

Palliative Care for Frail Older Adults

Elaine C. Meyer, PhD, RN

Institute for Professionalism and Ethical Practice

Children's Hospital Boston

Boston, Massachusetts, USA

Sudden Traumatic Death in Children

Frederick J. Meyers, MD

Department of Medicine

University of California, Davis, School of Medicine

Sacramento, California, USA

Palliative Care for Prison Inmates

Christine Miaskowski, RN, PhD

Department of Physiological Nursing

University of California, San Francisco

San Francisco, California, USA

End-of-Life Care for Homeless Patients

Hiroshi Mitsumoto, MD, DSc

Eleanor and Lou Gehrig MDA/ALS Research Center

Neurological Institute of New York

Columbia University Medical Center

New York, New York, USA

Palliative Care for Patients With Amyotrophic Lateral Sclerosis

Morrison R. Sean, MD

National Palliative Care Research Center

Brookdale Department of Geriatrics and Palliative Medicine

Mount Sinai School of Medicine

New York, New York, USA

Palliative Care for Patients With Head and Neck Cancer

Natalie Moryl, MD

Pain and Palliative Care Service

Department of Medicine

Memorial Sloan-Kettering Cancer Center

New York, New York, USA

Managing an Acute Pain Crisis in a Patient With Advanced Cancer

Balfour M. Mount, MD

McGill Medicine Whole Person Care

McGill University

Montreal, Quebec, Canada

Self-care of Physicians Caring for Patients at the End of Life

Steven Z. Pantilat, MD

Palliative Care Program

Division of Hospital Medicine

Department of Medicine

University of California, San Francisco

San Francisco, California, USA

Palliative Care for Patients With Heart Failure

The End of the Story (various chapters)

Eliseo J. Pérez-Stable, MD

Division of General Internal Medicine

Department of Medicine

University of California, San Francisco

San Francisco, California, USA

Palliative Care for Latino Patients and Their Families

David M. Poppel, MD

Renal Program

Department of Medicine

Baystate Medical Center and Western New England Renal & Transplant Associates

Springfield, Massachusetts, USA

Practical Considerations in Dialysis Withdrawal

Thomas J. Prendergast, MD

Section of Pulmonary and Critical Care Medicine

Oregon Health & Science University and Portland Veterans Affairs Medical Center

Portland, Oregon, USA

Withdrawal of Life Support

Holly Gwen Prigerson, PhD

Center for Psycho-oncology and Palliative Care Research

Dana-Farber Cancer Institute

Brigham and Women's Hospital

Harvard Medical School

Boston, Massachusetts, USA

Caring for Bereaved Patients

Kathleen A. Puntillo, RN, DNSc

Department of Physiological Nursing

School of Nursing

University of California, San Francisco

San Francisco, California, USA

Withdrawal of Life Support

Timothy E. Quill, MD

Center for Ethics, Humanities, and Palliative Care

School of Medicine

University of Rochester

Rochester, New York, USA

Initiating End-of-Life Discussions With Seriously Ill Patients

Judith G. Rabkin, PhD, MPH

New York State Psychiatric Institute and Department of Psychiatry

College of Physicians and Surgeons

Columbia University

New York, New York, USA

Palliative Care for Patients With Amyotrophic Lateral Sclerosis

Michael W. Rabow, MD

Division of General Internal Medicine

Department of Medicine

University of California, San Francisco

San Francisco, California, USA

Physician Opportunities to Support Family Caregivers at the End of Life

The End of the Story (various chapters)

Gordon Rubenfeld, MD, MSc

Interdepartmental Division of Critical Care Medicine

Department of Medicine

Program in Trauma, Emergency, and Critical Care

Sunnybrook Health Sciences Centre

University of Toronto

Toronto, Ontario, Canada

Palliative Sedation in Dying Patients

Peter A. Selwyn, MD, MPH

Department of Family and Social Medicine

Montefiore Medical Center

Albert Einstein College of Medicine

Bronx, New York, USA

Overcoming the False Dichotomy of Curative vs Palliative Care for Late-Stage HIV/AIDS

Joseph W. Shega, MD

Section of Geriatrics and Palliative Medicine

Department of Medicine

University of Chicago

Chicago, Illinois, USA

Management of Intractable Nausea and Vomiting in Patients at the End of Life

Karolynn Siegel, PhD

Mailman School of Public Health

Columbia University

New York, New York, USA

Adolescent Grief

Alexander K. Smith, MD, MS, MPH

Division of Geriatrics

Department of Medicine

University of California, San Francisco and San Francisco Veterans Affairs Medical Center

San Francisco, California, USA

Palliative Care for Latino Patients and Their Families

Thomas J. Smith, MD

Thomas Palliative Care Unit

Massey Cancer Center

Virginia Commonwealth University

Richmond, Virginia, USA

The Role of Chemotherapy at the End of Life

Anthony E. Steimle, MD

Heart Failure Program

Kaiser Permanente Northern California

Santa Clara, California, USA

Palliative Care for Patients With Heart Failure

Rebecca L. Sudore, MD

Division of Geriatrics

Department of Medicine

University of California, San Francisco and San Francisco Veterans Affairs Medical Center

San Francisco, California, USA

Palliative Care for Latino Patients and Their Families

Daniel P. Sulmasy, OFM, MD, PhD

The MacLean Center for Clinical Medical Ethics

Schools of Medicine and Divinity

University of Chicago

Chicago, Illinois, USA

Spiritual Issues in the Care of Dying Patients

Joan M. Teno, MD, MS

Center for Gerontology and Health Care Research

Warren Alpert School of Medicine of Brown University

Providence, Rhode Island, USA

Referring a Patient and Family to High-Quality Palliative Care at the Close of Life

Susan W. Tolle, MD

Center for Ethics in Health Care

Oregon Health & Science University

Portland, Oregon, USA

Responding to Requests for Physician-assisted Suicide

Robert D. Truog, MD

Institute for Professionalism and Ethical Practice

Harvard Medical School and Children's Hospital Boston

Boston, Massachusetts, USA

Sudden Traumatic Death in Children

James A. Tulsky, MD

Center for Palliative Care

Duke University and Durham Veterans Affairs Medical Center

Durham, North Carolina, USA

Beyond Advance Directives

Mary L. S. Vachon, RN, PhD

Department of Psychiatry and Dalla Lana School of Public Health

University of Toronto

Toronto, Ontario, Canada

Self-care of Physicians Caring for Patients at the End of Life

Ladislav Volicer, MD, PhD

School of Aging Studies

University of South Florida

Tampa, Florida, USA

Alzheimer Disease

Charles Gunten F. von, MD, PhD

Institute for Palliative Medicine

San Diego Hospice

San Diego, California, USA

Secondary and Tertiary Palliative Care in Hospitals

Jamie H. von Roenn, MD

Division of Hematology/Oncology

Department of Medicine

Feinberg School of Medicine and Robert H. Lurie Comprehensive Cancer Center

Northwestern University

Chicago, Illinois, USA

Management of Intractable Nausea and Vomiting in Patients at the End of Life

Radhule B. Weininger, MD, PhD

La Casa de Maria Retreat and Conference Center

Santa Barbara, California, USA

Self-care of Physicians Caring for Patients at the End of Life

David E. Weissman, MD

Palliative Care Education, LLC

Milwaukee, Wisconsin, USA

Decision Making at a Time of Crisis Near the End of Life

Joanne Wolfe, MD, MPH

Pediatric Palliative Care

Department of Medicine

Children's Hospital Boston and Pediatric Palliative Care Service

Department of Psychosocial Oncology and Palliative Care

Dana-Farber Cancer Institute

Boston, Massachusetts, USA

Caring for the Child With Cancer at the Close of Life

Gordon J. Wood, MD

Section of Palliative Care and Medical Ethics

Institute to Enhance Palliative Care

University of Pittsburgh

Pittsburgh, Pennsylvania, USA

Management of Intractable Nausea and Vomiting in Patients at the End of Life

Sriram Yennurajalingam, MD

Division of Cancer Medicine

Department of Palliative Care and Rehabilitation Medicine

MD Anderson Cancer Center

Houston, Texas, USA

Palliative Management of Fatigue at the Close of Life

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